Stanford Plan

 So, after my last post—I was determined to make an appointment with my doctor at Stanford Health in Palo Alto, CA. During my appointment, he consulted with another practitioner—and they both agreed that they can try to excise my scar and treat it with laser therapy post surgery. I was hesitant when he first mentioned this treatment modality, because I’ve done an excision procedure before and my scar came back bigger!

However, I do trust him and am willing to try again. Perhaps I wasn’t getting the best treatment before, but my new doctor has a plan. We are waiting for my insurance to approve the procedure and treatment, and I might be doing this at the end of the summer. Will keep everyone posted!

July 2020 - SIP

Hello World!

I have to admit, since shelter in place started—it’s been hard to get an appointment at my doctor’s office. I haven’t been in the plastic’s department since March 🤪

My scars are definitely not as puffy as they used to be, but I started getting these spider veins and white spots all over my keloids. I have emailed my doctor about it, but we haven’t been able to set an appointment.

Silicon sheets

It’s been 5 days since my visit to Stanford Plastics, and I’ve switched from Cortran tape (12 hours a day) to Silicon tape (24/7) and it looks like my scars are starting to flatten!

Stanford Health Care - Plastic Surgery Dept

Update!

I recently accepted a full-time job (Am I a grown up yet?) that's allowed me to change my health care plan, and am now revising my health team. I've been a Kaiser member since birth, but thought I would change it up a little to get a new perspective on care so I signed up for Athem Blue Cross PPO. I haven't really decided on how my doctors compare, but thought I would give Stanford a shot---especially cause I've been dealing with these keloids since forever. Converting health care plans is no fun. I've had to get my records in order, request my files be transferred and also get referred again related things I've been seeing doctors for a long time for.

Hopefully this change will be worth a shot. I saw a Plastic Surgery doctor today for the first time at Stanford in Palo Alto. I cried in the office when explaining my treatment history, what I've tried, modalities that did not work. It seems like there's little any doctor can do. It was hard to get the words out and explain to the new doctor why I switched to a new hospital. It's not that I didn't like my old doctor, it just started to feel a bit routine. I wanted to new person to consult with. There has been so many times I've considered flying down to LA or New York for a new professional's opinion. These scars are unpredictable and tricky, especially with the placement of my scars being directly located mid chest where there is so much tension. I guess I'm a little sad that I lost my old doctor with the insurance switch. She's been with me since my keloid excision and watched me grow up in a lot of ways.

I was able to get a round of kenelog shots in, which is pretty normal maintenance for my scars. It's starting to feel like getting an oil change, haha. Just something I need to do every 3 months. Anyway, the Stanford doctor thinks I should stop with Cordran tape (what!) and solely use silicon sheets 24-7. New doctor, new opinions---so I am willing to try this too.

New news: New doctor is willing to excise again. I'm scared though. I've excised before with a worse re-occurrence of the original scar. He thinks it could be different, followed immediately by radiation. It's something to think about. What are your thoughts world? Worth a shot?

Progress

Here’s an update photo!

I have a doctor appt on Monday for my third round of injections for this cycle. The tape has seemed to be helping.

Cordran Tape Tips

Hello!

My doctor prescribed cordran tape to maintain my scars from  getting too out of hand, and it really helps to keep my scars from getting bulky! I’ve noticed that when I use the tape, it slows the growth process of my scars and usually also helps with the itching.

However, the tape needs to be cut exactly like the shape of my scars—so everyday I would have to customize my tape by cutting it exactly to size! However, since my doctor recently asked me to use the tape everyday, replacing it every 12 hours—I found some short cups to make this process less annoying,

I can’t belive I didn’t think of this sooner! What I’m doing nowadays is pre-cutting my tape. I use a stencil so the tape is the same shape as my scars. Because they are pre-cut, I’m more likely to keep up with using the tape everyday instead of having to cut it to shape everyday. I pre-cut about 2 weeks worth of the Cortran tape.

Anyway. Cutting the tape was really the most annoying part—it would leave little bits of paper everywhere and stick to my scissors and pre-cutting it makes everyday a little easier. Hope this helps anyone who’s also having to use cordran tape

Hello! Here’s just a quick update, not much has changed! In this pic, I have cordran tape on my scars. My doctor asked me to take a break from the steroid shots, and I was due for an injection this month—but just started a new job so I wasn’t able to get an appointment. I’ll be booking an appointment for the next week!

Also, I’ve been reading your comments. Thank you for the words of encouragement, sharing your treatment stories, and letting me know that I am being heard on this platform. I share such similarities to what you have shared. I’m rethinking radiation, and maybe thinking about contacting a specialist for cryotherapy. I’ll keep you posted when I’ve decided which route I’ll be going. 

I too, get discouraged when I’m picking out my clothes or am shopping for tops because it’s such a huge part of my identity. I’m always trying to find the perfect top that hides me scar. I know that the scar is part of me, but it’s such easier to hide it then having to explain what it is and how I got it. 

I’m working up the courage to not care as much, but it’s not easy.